136 people with 胱氨酸尿症 have joined the DiseaseMaps community map. They have shared 143 first-person answers and 6 stories about living with the condition.
15 胱氨酸尿症患者已参加了SF36调查问卷. Mean of 胱氨酸尿症 is 1694 points (47 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey