136 people with Cystinuria have joined the DiseaseMaps community map. They have shared 143 first-person answers and 6 stories about living with the condition.
15 people with Cystinuria have taken the SF36 survey. Mean of Cystinuria is 1694 points (47 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey