266 people with 遗传性多发性外生骨疣 have joined the DiseaseMaps community map. They have shared 265 first-person answers and 9 stories about living with the condition.
10 遗传性多发性外生骨疣患者已参加了SF36调查问卷. Mean of 遗传性多发性外生骨疣 is 2207 points (61 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey