There are 254 people in the Hereditary multiple exostoses map
266 people with Hereditary multiple exostoses have joined the DiseaseMaps community map. They have shared 265 first-person answers and 9 stories about living with the condition.
There are many different ways to live your life. There are many different walls put in front of you throughout your life. Some people lose a family member, others a love but few have to battle against themselves and the misfortune of an illness. Ha...
I have "spontaneous" MHE. No one else in my family has been identified as having MHE. We first discovered it when I was 4 years old, and I have had 17 surgeries. I have actually done really well most of the time and I have a very active life! M...
I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. W...
10 people with Hereditary multiple exostoses have taken the SF36 survey. Mean of Hereditary multiple exostoses is 2207 points (61 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
