429 people with 先天成骨不全症 have joined the DiseaseMaps community map. They have shared 258 first-person answers and 25 stories about living with the condition.
17 先天成骨不全症患者已参加了SF36调查问卷. Mean of 先天成骨不全症 is 1612 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey