There are 413 people in the Osteogenesis Imperfecta map
429 people with Osteogenesis Imperfecta have joined the DiseaseMaps community map. They have shared 258 first-person answers and 25 stories about living with the condition.
Quando meu Matheus nasceu a gente morava em uma cidade minúscula do interior do Paraná. Ele já nasceu com muitas fraturas, mas os médicos não viram nenhuma delas, até que no dia em que comple...
I've got Osteogenesis Imperfecta, and my son has Pulmonary Atresia with Intact Ventricular Septum. Figured I'd put that here since there's no option to add a family member or anything like that.
I was diagnosed at a very young age. I have 3 children, one with OI type 1 and 4 grand babies and one of them has OI as well. It's been a long road but one I wouldn't have changed. My Dad pasted it on to me and my siblings. My Mom has been a wonderfu...
Well our oi story began on 22 th week of my wife's pregnancy.doctors have realised some bowing on both femurs of our baby girl and advised to visit an expert.lucky us that we met with Prof. Dr.Atil Yüksel.
17 people with Osteogenesis Imperfecta have taken the SF36 survey. Mean of Osteogenesis Imperfecta is 1612 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
