162 people with 阵发性睡眠性血红蛋白尿症 have joined the DiseaseMaps community map. They have shared 230 first-person answers and 8 stories about living with the condition.
7 阵发性睡眠性血红蛋白尿症患者已参加了SF36调查问卷. Mean of 阵发性睡眠性血红蛋白尿症 is 1719 points (48 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey