There are 155 people in the Paroxysmal nocturnal hemoglobinuria map
162 people with Paroxysmal nocturnal hemoglobinuria have joined the DiseaseMaps community map. They have shared 230 first-person answers and 8 stories about living with the condition.
I was diagnosed with Psoriatic arthritis at age 19. After many medication I was put on enbre ant tbf medication. This worked great for 3 years until my platelets and HB started dropping.
I was referred to see a haematologist and after 2 years,...
7 people with Paroxysmal nocturnal hemoglobinuria have taken the SF36 survey. Mean of Paroxysmal nocturnal hemoglobinuria is 1719 points (48 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
