Help us to help more people
  2. Paroxysmal nocturnal hemoglobinuria
  3. Advice
Minha família e amigos
by Margareth
Encontrar pessoas que passam pelo mesmo problema
by Jorge Luiz
Meu Deus que me sustentou em todo meu processo
by Marcos Airton Jamas
Eculizumab
by Silvia
Alimentação
by Gelson
soliris
by richard darling
Soliris
by Mary
the correct pain relief
by Janette
the correct pain relief
by Janette
Soliris
by Scott
Strong support system
by Jessica
God's love & provision for me
by Myra
Soliris has transformed me
by Lucy
SOLIRIS
by Mikael Wennerhav
10 years
by Seth
Quick & right diagnosis by the right doctor
by P R
meu filho
by Denise roque de toledo correia
Perspective
by Christy
Symptoms started in 2015
by Tracey
Meeting older people who have lived with this disease for decades gives me hope...
by Tyana
My husband
by Jo
Prednisone, low dosage 2.5mg to 10mg is my lifeline... transfusions have stopped completely... 10yrs now
by Rachel
Blood transfusion!
by Mandy
Seeing a PNH specialist
by Marlena
Soliris IV every other Thursday
by Cindy
Soliris
by Dana
Ter acesso a um Pronto Atendimento de Excelente Qualidade
by Margareth
Apoio da família
by Jorge Luiz
Minha amada esposa que ajudou e me apoiou em todo o tempo.
by Marcos Airton Jamas
Mente ocupada
by Gelson
increased knowledge through PNH sites and conferences
by richard darling
Family Support
by Mary
giving myself permission to rest when needed
by Janette
giving myself permission to rest when needed
by Janette
Family
by Scott
Great doctor. Dr. Maciejewski
by Jessica
Soliris:no more blood transfusions & able to work
by Myra
Trust in my wonderful doctors
by Lucy
CELCIUS ENERGY DRINKS
by Mikael Wennerhav
Understanding if the condition & options avaliable
by P R
meu marido
by Denise roque de toledo correia
Getting in shape
by Christy
Diagnosed in February 2016
by Tracey
Keepin an eye out for new research gives me hope #teamhope4Acure
by Tyana
My 3 children
by Jo
Vitamins which help with circulations i.e. Fish oils, Krill, Q10 to avoid blood clots... #1 killer for PNH patients
by Rachel
Humira
by Mandy
Getting Soliris
by Marlena
Know your limitations & don't over commit
by Cindy
Conseguir rápido a medicação para a doença
by Margareth