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What are the best treatments for Alport Syndrome?

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Alport Syndrome treatments
2 answers
Currently, there are no approved therapies for the treatment of Alport syndrome.

Our organization is conducting a single, pivotal registrational Phase 2/3 study named CARDINAL to evaluate the safety and efficacy of bardoxolone methyl in patients with chronic kidney disease (CKD) caused by Alport syndrome.
Posted Feb 6, 2018 by Reata Pharmaceuticals - CARDINAL Study for Alport Syndrome
There are none currently
Posted Sep 18, 2017 by Mark 800

Alport Syndrome treatments

Alport Syndrome life expectancy

What is the life expectancy of someone with Alport Syndrome?

3 answers
Celebrities with Alport Syndrome

Celebrities with Alport Syndrome

2 answers
Is Alport Syndrome hereditary?

Is Alport Syndrome hereditary?

4 answers
Is Alport Syndrome contagious?

Is Alport Syndrome contagious?

3 answers
ICD9 and ICD10 codes of Alport Syndrome

ICD10 code of Alport Syndrome and ICD9 code

3 answers
Natural treatment of Alport Syndrome

Is there any natural treatment for Alport Syndrome?

2 answers
Living with Alport Syndrome

Living with Alport Syndrome. How to live with Alport Syndrome?

3 answers
Alport Syndrome diet

Alport Syndrome diet. Is there a diet which improves the quality of life of...

2 answers

World map of Alport Syndrome

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Stories of Alport Syndrome

ALPORT SYNDROME STORIES
Alport Syndrome stories
SARAH'S STORY
My name is Sarah I'm from East Yorkshire, England. I was diagnosed at the age of 2. I have been under the watch of hospitals my whole life. In 2010 I was told my kidney was failing a year later I was on Pd dialysis. During this time my brother also w...
Alport Syndrome stories
AUTOSOMAL RECESSIVE ALPORTS SYNDROME
My son was diagnosed with Alports after he contracted meningococcal septicemia at the age of 2, it wasn't for another 2 years at the age of 4 that they discovered what it was he was suffering from. Genetics revealed that both me an my son's father(se...
Alport Syndrome stories
OUR DAUGHTER
In 2012 our youngest daughter, born in 2010, got hospitalized due to pneumonia. During basic testings they discovered protein and microscopic hematuria in her urine samples, and since they couldn't find any reason to why they sent her for a genetic s...
Alport Syndrome stories
SPRACKLEN FAMILY
My dad, Lee Spracklen, knew the minute I was born a girl that I had Alport Syndrome.  My dad had it and our family has X linked Alports.  Which meant he gave me his bad X. My dad had issues with his kidneys as a young boy. And had a kidney transpla...
Alport Syndrome stories
MY SON!
Born with Alports. Has been medicated since he was 2 months. Could not tell anything was wrong at all. In the last few years he has lost a bit of hearing and had to get glasses. Now he is 18 and we are in the first steps of starting the transplant. ...

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ALPORT SYNDROME FORUM

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