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How is Amyloidosis diagnosed?

How Amyloidosis is diagnosed: tests, specialists and the diagnostic journey, told by patients and reviewed against medical sources.

Amyloidosis diagnosis
4 answers
TAKES TIME
USUALLY AFTER SEVERAL BIOPSIES AND cMRI

Posted Jul 11, 2019 by ESPERARE
I had a kidney biopsy after abnormal urine tests, but completely normal x rays and ultrasound.

Posted Mar 2, 2017 by Beth 1100
I live in a small town that not anyone has heard of Amylodosis before. I went to a heart and lung doctor for over a year trying to find out what was wrong with me. I finally went to a kensiologist in Texarkana. He saved life. He told me I needed to go to a doctor in Houston or Dallas that could figure out what I needed. Thank God he did because my son and I drove down to Houston and it was maybe one day until I really could not do a thing. I had been put in the hospital and from that moment on I was truly sick. I got down to about 98 pounds. i guess within three days they figured out what was wrong with me.

Posted Jun 3, 2017 by Nancy 2000
For me it was a small intestine biopsy along with light chain assay.

Posted Jul 19, 2017 by Phyllis 2000

Amyloidosis diagnosis

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World map of Amyloidosis

Find people with Amyloidosis through the map. Connect with them and share experiences. Join the Amyloidosis community.

Stories of Amyloidosis

AMYLOIDOSIS STORIES
Amyloidosis stories
Hi , Four years ago , I was diagnosed with Familial Amyloid Polyneuropathy with the mutation Val30Met. In order to halt the progress of the disease I went through a liver transplantation .  I am currently living my life to the maximum by doing ev...
Amyloidosis stories
No real help for AA of unknown cause. In my digestive tract now too. 
Amyloidosis stories
His name was Sidney Caldwell.  I lost him to AL Amyloidosis in November of 2014
Amyloidosis stories
Spring  of 2014 started out with the usual cold. By August/September my proper voice never returned properly and many people thought I had a cold all the time. Went to my GP who sent me to Specialist in my town and from there yo another Specialist/S...
Amyloidosis stories
Like many people with Amyloidosis, I was dismissed by the medical profession.. The symptoms are variable and vague and they mak other illnesses. However in saying that when one googles them all together viola AMYLOIDOSIS comes up as a likely diagnosi...

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