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What are the best treatments for Amyloidosis?

Treatments for Amyloidosis: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.

Amyloidosis treatments
4 answers
THERE IS NO CURE FOR AMYLOIDOSIS

Posted Jul 11, 2019 by ESPERARE
For my type, it's controlling the primary cause. Humira weekly has helped.

Posted Mar 2, 2017 by Beth 1100
I personally think that being in touch with your doctors and nurses is the best way to get through this. With all the treatments and stuff you have to go through you need them there.

Posted Jun 3, 2017 by Nancy 2000
My treatment was melphalan, and dexamethazone.over 4 days every 4 weeks for 6 months, break of 2 months, then 3 more months.

Posted Jul 19, 2017 by Phyllis 2000

Amyloidosis treatments

Amyloidosis life expectancy

What is the life expectancy of someone with Amyloidosis?

7 answers
Celebrities with Amyloidosis

Celebrities with Amyloidosis

3 answers
Is Amyloidosis hereditary?

Is Amyloidosis hereditary?

4 answers
Is Amyloidosis contagious?

Is Amyloidosis contagious?

4 answers
ICD9 and ICD10 codes of Amyloidosis

ICD10 code of Amyloidosis and ICD9 code

4 answers
Natural treatment of Amyloidosis

Is there any natural treatment for Amyloidosis?

4 answers
Living with Amyloidosis

Living with Amyloidosis. How to live with Amyloidosis?

6 answers
Amyloidosis diet

Amyloidosis diet. Is there a diet which improves the quality of life of peo...

5 answers

World map of Amyloidosis

Find people with Amyloidosis through the map. Connect with them and share experiences. Join the Amyloidosis community.

Stories of Amyloidosis

AMYLOIDOSIS STORIES
Amyloidosis stories
Hi , Four years ago , I was diagnosed with Familial Amyloid Polyneuropathy with the mutation Val30Met. In order to halt the progress of the disease I went through a liver transplantation .  I am currently living my life to the maximum by doing ev...
Amyloidosis stories
No real help for AA of unknown cause. In my digestive tract now too. 
Amyloidosis stories
His name was Sidney Caldwell.  I lost him to AL Amyloidosis in November of 2014
Amyloidosis stories
Spring  of 2014 started out with the usual cold. By August/September my proper voice never returned properly and many people thought I had a cold all the time. Went to my GP who sent me to Specialist in my town and from there yo another Specialist/S...
Amyloidosis stories
Like many people with Amyloidosis, I was dismissed by the medical profession.. The symptoms are variable and vague and they mak other illnesses. However in saying that when one googles them all together viola AMYLOIDOSIS comes up as a likely diagnosi...

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Amyloidosis forum

AMYLOIDOSIS FORUM

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