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Which advice would you give to someone who has just been diagnosed with Amyotrophic lateral sclerosis ALS?

Advice for the newly diagnosed with Amyotrophic lateral sclerosis ALS, written by people who have lived it. What they wish they had known on day one.

Amyotrophic lateral sclerosis ALS advice
6 answers
I would like to thank Ultimate Health Home for reversing my father's Amyotrophic Lateral Sclerosis (ALS). My father’s ALS condition was fast deteriorating before he started on the ALS Herbal medicine treatment from Ultimate Health Home. He was on the treatment for just 6 months and we never thought my father will recover so soon. He has gained some weight in the past months and he is able to walk with no support. You can contact them at [email protected]

Posted Apr 15, 2021 by William 1320
Translated from portuguese Improve translation
Run behind care fisioterãpicos, fonoaudiológicos and psychological. Occupational therapy for tb is desejãvel!
Prepare your logistics ( house or apartment) to receive this new life and all equipment that will come.with.she.
Enjoy the mãximo each phase( go, travel, have fun)!
Do not take a risk: to accept each stage with ease.( including the limitaçöes)
Read, write, increase your social network!
Nåo't give up!

Posted May 11, 2017 by Hilda 900
Translated from spanish Improve translation
Calm, calm and calm there is a road there is hope. Accepts the disease, it is an expression of your body to many notices before you didn't hear, escuchate yourself.
Had taken separate decisions in a timely manner, before the disease. Then she would do the same that I did (look at the complementary medicine, transcendental Meditation, etc) and with greater intensity. I have a survival rate of 14 years and I will not die of ALS!.

Posted May 25, 2017 by Ricardo 2000
Translated from spanish Improve translation
Who does not believe in the time of survival, that does not subtract days to the calendar, change your lifestyle, learn to manage their emotions, and focus on what you can do today, that you follow medical advice and seek treatment options

Posted May 27, 2017 by Aranzazú 2060
Translated from french Improve translation
take this with the benefit of hindsight, avoid unnecessary stress, whatever it is

Posted Aug 22, 2017 by Forget Vincent 1100
Translated from spanish Improve translation
That you do not lose the hope that we all react different to treatments and that in time I will see an improvement . And that there are exceptional cases that there are people who have recovered satisfactorily.
Would have traveled the world if you have that possibility . Leave the past behind, people toxic and other negative things.

Posted Oct 3, 2017 by Marcela 1500

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Sou médica e infelizmente tive o desprazer de acompanhar o desenvolvimento de uma esclerose lateral amiotrófica de inicio bulbar em minha mãe,  com início em março/2015. Em pouco mais de 1 ano de doença vi não só a vida de minha mãe desabar...

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