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How is Antiphospholipid / Hughes Syndrome diagnosed?

How Antiphospholipid / Hughes Syndrome is diagnosed: tests, specialists and the diagnostic journey, told by patients and reviewed against medical sources.

Antiphospholipid / Hughes Syndrome diagnosis
8 answers
Blood tests

Posted May 16, 2017 by Kate 1000
with a sinple blood test called the lupus anticoagulant test

Posted May 17, 2017 by Ruth 1321
Usually after some event (a clot or miscarriage), a hematologist will perform a simple blood test.

Posted May 18, 2017 by RoeVar 601
Lupus anticoagulant is one of the main tests. Specialists such as hemotologist, oncologist are important to have.

Posted May 18, 2017 by Tauren 2100
Multiple blood tests, Haematologist, Rheumatologist

Posted Oct 30, 2017 by Denise Hampson 2000
By the outward manifestations of the blood disorder. I.e., blood clots, miscarriages, strokes.
The diagnosis must be made by a trained medical professional.

Posted Feb 3, 2018 by Lhrlovesmar 3550
Blood test for antiphospholipid antibodies

Posted May 1, 2019 by JL 1700
You get a series of two tests to see if the antibodies have a sustained presence in your blood. The tests consist of two abnormal results at least twelve weeks apart. One test alone is not enough, because people can have fleeting positive results, but the two tests prove an ongoing presence in your blood.

Posted Aug 17, 2022 by gloria_kazan 7450

Antiphospholipid / Hughes Syndrome diagnosis

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World map of Antiphospholipid / Hughes Syndrome

Find people with Antiphospholipid / Hughes Syndrome through the map. Connect with them and share experiences. Join the Antiphospholipid / Hughes Syndrome community.

Stories of Antiphospholipid / Hughes Syndrome

ANTIPHOSPHOLIPID / HUGHES SYNDROME STORIES
Antiphospholipid / Hughes Syndrome stories
Hi my name is Tracy I'm 49 yrs old .. Just over 2 yrs ago I woke at 5am with cramp in my calf wasn't able to weight bare on it so gp told me to rest.. 2 days later it swelled up and was red n painful so husband took me to A&E had blood done came bk p...
Antiphospholipid / Hughes Syndrome stories
I miscarried 3 times before my doctor decided to see why my babies were dying inside of me. The third pregnancy lasted 20 weeks. It was the baby girl I longed for and I was devastated. I was diagnosed in 1992 but we waited 6 years to try again. I was...
Antiphospholipid / Hughes Syndrome stories
I've been struggling with a lot of symptoms since the early teens. No doctor believed me until I got my first blood clot at 18. I got diagnosed in march 2016.
Antiphospholipid / Hughes Syndrome stories
I had my first experience with a blood clot and 1999. It was behind my left me. I've been ended up with multiple pes throughout my lungs. I felt like I was going to die. Fast forward to 2006 and 6 miscarriages later. I found out that I was pregnant. ...
Antiphospholipid / Hughes Syndrome stories
Had a stroke back in 1997. Had the diagnose in 2003. Thinking back my symptoms started back in the 1980's. Numb left foot causing problems walking or standing for longer periods. It turned out that I had a large cloth in the artery to the leg. Had ...

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