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Which are the symptoms of Antiphospholipid / Hughes Syndrome?

See the worst symptoms of affected by Antiphospholipid / Hughes Syndrome here

Antiphospholipid / Hughes Syndrome symptoms
12 answers
Fatigue, joint pain and blood tests related to medication

Posted May 16, 2017 by Kate 1000
blood clots which can and do cause strokes, heart attacks and lung problems

Posted May 17, 2017 by Ruth 1321
Obviously, the clots are awful, but managing your medicine with the right team of medical professionals is incredibly helpful! When in doubt about a symptom, I always call my doctor ( hematologist, cardiologist, rheumatologist neurologist) from a pain in my leg or chest to something that is new to me like the first time I experienced a cluster vein. I never had headaches until I developed this disease then developed migraines, but with proper management, I am living a full life!

Posted May 18, 2017 by RoeVar 601
Clots

Posted May 18, 2017 by Tauren 2100
The fatigue, the joint stiffness and the chronic pain are daily struggles although in themselves aren't life threatening, they reduce the quality of life and are the ones hard to control. Blood clots and organ disease are severe and knowing when to act on symptoms and events such as stroke and dvt/pe is key alongside therapy. There are so many scary symptoms but surprisingly the ones I fear the most are the headaches, the memory loss and the fatigue rather than the blood clots as they take away the enjoyment of daily life.

Posted Jul 23, 2017 by Frhdixon 252
The absolute worst symptom of APS is Stroke. Blood clots can and do cause Strokes, and they can occur at any age, and at any time and they don't care if you are male, female. I have been blessed to survive 4 major strokes and five minor strokes, I have lost most of my vision due to one stroke, had to relearn how to walk, talk, read and write after 2 of them, I have also survived multiple TIA's and DVT's, due to clots

Posted Sep 8, 2017 by Kevin 302
Pain from blood clots, dvt, pe's, migraines, miscarriages, and skin conditions

Posted Sep 8, 2017 by Samantha 100
Stroke, I suffered multiple strokes and registered vision impaired

Posted Oct 30, 2017 by Denise Hampson 2000
It can range from no symptoms, to:
late trimester loss of pregnancy, TIAs, stroke, livedo reticularis, 'brain fog', seizures, DVTs. Basically any system as the disease causes superclotting -- which can affect any system in the body.

Posted Nov 5, 2017 by Lynny 550
Recurrent miscarriages, blood clots, strokes, T.I.A.'s, visual disturbances, skin rash.

Posted Feb 3, 2018 by Lhrlovesmar 3550
Migraines were the worst. False positive syphilis test was the most embarrassing.

Posted May 1, 2019 by JL 1700
Blood clots, miscarriages, DVTs, Strokes

Posted Aug 17, 2022 by gloria_kazan 7450

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World map of Antiphospholipid / Hughes Syndrome

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Stories of Antiphospholipid / Hughes Syndrome

ANTIPHOSPHOLIPID / HUGHES SYNDROME STORIES
Antiphospholipid / Hughes Syndrome stories
Hi my name is Tracy I'm 49 yrs old .. Just over 2 yrs ago I woke at 5am with cramp in my calf wasn't able to weight bare on it so gp told me to rest.. 2 days later it swelled up and was red n painful so husband took me to A&E had blood done came bk p...
Antiphospholipid / Hughes Syndrome stories
I miscarried 3 times before my doctor decided to see why my babies were dying inside of me. The third pregnancy lasted 20 weeks. It was the baby girl I longed for and I was devastated. I was diagnosed in 1992 but we waited 6 years to try again. I was...
Antiphospholipid / Hughes Syndrome stories
I've been struggling with a lot of symptoms since the early teens. No doctor believed me until I got my first blood clot at 18. I got diagnosed in march 2016.
Antiphospholipid / Hughes Syndrome stories
I had my first experience with a blood clot and 1999. It was behind my left me. I've been ended up with multiple pes throughout my lungs. I felt like I was going to die. Fast forward to 2006 and 6 miscarriages later. I found out that I was pregnant. ...
Antiphospholipid / Hughes Syndrome stories
Had a stroke back in 1997. Had the diagnose in 2003. Thinking back my symptoms started back in the 1980's. Numb left foot causing problems walking or standing for longer periods. It turned out that I had a large cloth in the artery to the leg. Had ...

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