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What are the best treatments for Antiphospholipid / Hughes Syndrome?
Treatments for Antiphospholipid / Hughes Syndrome: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.
Depends on your symptoms.
Usually blood thinners (warfarin etc) to control clotting factors.
Usually blood thinners (warfarin etc) to control clotting factors.
Posted May 16, 2017 by Kate 1000
Blood thinners like heparin, warfarin and clexane help along with watching your diet
Posted May 17, 2017 by Ruth 1321
I can only speak for me (and I'm not a doctor), but after speaking at length with my doctor and seeing Dr. Lockshin at HSS in NYC, it was determined that Lovenox and aspirin therapy with plaquenil is best for me now. Prior to this, I was on Coumadin. Some people have asked why I'm not on some of the new treatments being developed and it's simply due to the fact that these haven't been developed specifically for APS and I don't want a problem.
Posted May 18, 2017 by RoeVar 601
Anticoagulant
Posted May 18, 2017 by Tauren 2100
The main aim of therapy is to reduce the chance of blood clotting. This is normally done through anticoagulants or other drugs that thin the blood. Warfarin is the first one tried usually, sometimes aspirin, sometimes Heparin depending on your own symptoms and diagnosis.
Everyone is different and working with a specialist is important to find the right therapy. For me, warfarin reduces the risk of clots, fluoxetine helps with the depression, amitriptyline with the migraines and hydroxychloroquine with the joint pain. Others need different anticoagulants like Heparin/rivoroxiban to thin the blood. Different people react differently to different drugs so a trusted medical specialist is imperative. Finding support from family, friends work colleagues is important to make sure the right treatment has the space and time to work.
New anticoagulants are being developed all the time, with fewer side effects and less need for close monitoring (such as frequent blood tests with warfarin) but they may not be suitable for you. A good specialist is important in finding the right treatment.
Hydroxychloroquine takes weeks to kick in sometimes, for me it was 3-4 months before I noticed a difference.
Warfarin requires caution to be taken with diet and close monitoring from your doctor.
Everyone is different and working with a specialist is important to find the right therapy. For me, warfarin reduces the risk of clots, fluoxetine helps with the depression, amitriptyline with the migraines and hydroxychloroquine with the joint pain. Others need different anticoagulants like Heparin/rivoroxiban to thin the blood. Different people react differently to different drugs so a trusted medical specialist is imperative. Finding support from family, friends work colleagues is important to make sure the right treatment has the space and time to work.
New anticoagulants are being developed all the time, with fewer side effects and less need for close monitoring (such as frequent blood tests with warfarin) but they may not be suitable for you. A good specialist is important in finding the right treatment.
Hydroxychloroquine takes weeks to kick in sometimes, for me it was 3-4 months before I noticed a difference.
Warfarin requires caution to be taken with diet and close monitoring from your doctor.
Posted Jul 23, 2017 by Frhdixon 252
Warfarin post stroke
Posted Oct 30, 2017 by Denise Hampson 2000
Coumadin is the treatment of choice. Coumadin is manufactured by only one company-Bristol Meyers. Having only one manufacturer is the only way to monitor quality consistency.
Posted Feb 3, 2018 by Lhrlovesmar 3550
Warfarin and stopping gluten intake for me. The migraines resolved when I stopped eating gluten, after twenty years.
Posted May 1, 2019 by JL 1700
for me, the best treatment is one 81 mg aspirin daily.
Posted Aug 17, 2022 by gloria_kazan 7450
