2. Arnold Chiari
3. Interviews

helen's interview

How did all start?

i had arnold chiari malformation diagnosed in 2013..

Do you already have a diagnosis? How long did it take you to get it?

about 10 years of medical problems and misread scans.

For what medical specialties have you been treated? What has been the most useful specialty for your?

brain surgeries, ventilator wheelchair user now,

What has been the most useful thing for you so far?

ventialtor

What have been your biggest difficulties?

pain autonomic nervous system problems.

How has your social and family environment reacted? Have your social or family relationships changed?

yes. immeasurably

What things have you stopped doing?

i am not able to do anything independent. my health is overwhelmingly poor