Story about Arnold Chiari , Congenital bilateral perisylvian syndrome, Intracranial Hypertension, Von Willebrand Disease, Arachnoiditis.

A Arnold Chiari story

Mar 4, 2016

Arnold Chiari

Congenital bilateral perisylvian syndrome Intracranial Hypertension Von Willebrand Disease Arachnoiditis

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myself and my eldest both have chiari and syringomyelia. i also have iih and hydrocephalus. my youngest son has polymicrogyria bilateral persyvian syndrome.

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2 comments

I am very new to this, my daughter Lucy was recently diagnosed in May and have no idea what to expect.

Commented 9 years ago Linda Fenech (my daughter Lucy is affected) 25

sorry not been on here for a while. all i can say is don't worry my son leads a very normal life and i have many other complications but the best thing i ever did was have decompression even though i've had a rough time of it.

A Arnold Chiari story

Mar 4, 2016

Know someone who should read this story? Share it

I am very new to this, my daughter Lucy was recently diagnosed in May and have no idea what to expect.

sorry not been on here for a while. all i can say is don't worry my son leads a very normal life and i have many other complications but the best thing i ever did was have decompression even though i've had a rough time of it.

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