- Behcet Syndrome
- Interviews
Brenda's interview
How did all start?
Extreme fatigue, chest pain, shortness of breath, iritis.
Do you already have a diagnosis? How long did it take you to get it?
Took 2 years for my providers to figure it out.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Rheumatology, optometry, ophthalmology. Rheum has been most helpful.
What has been the most useful thing for you so far?
Prednisone, antiinflammatories
What have been your biggest difficulties?
Continuing to work full time
How has your social and family environment reacted? Have your social or family relationships changed?
I do not go out socially any more. It really takes too much energy.
What things have you stopped doing?
Going out and exercising
What do you think about the future?
Unsure
So far, which years have been the best years in your life? What have you done during them?
Mid 30,s
If you had to describe your life in a sentence, what would it be?
Crazy, tired, limited.
Finally, what advice would you give to a person in a similar situation?
Rest when you can!