Story about Behcet Syndrome , Chronic Fatigue Syndrome / M.E., Cubital Tunnel Syndrome, Depression, Fibromyalgia, Gallstones, Gastroparesis, Hepatitis, Hypothyroidism, Lyme Disease, Migraine, Obesity, Peripheral Neuropathy, Plantar Fascitis, Restless Leg Syndrome, Sjogren, Tinnitus.

Behçet's

Sep 14, 2017

By: Michelle

Year Condition Began: 2013

Behcet Syndrome

Chronic Fatigue Syndrome / M.E. Cubital Tunnel Syndrome Depression Fibromyalgia Gallstones Gastroparesis Hepatitis Hypothyroidism Lyme Disease Migraine Obesity Peripheral Neuropathy Plantar Fascitis Restless Leg Syndrome Sjogren Tinnitus

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I feel everything started way back in 1990. Just out of high school I contracted mono. After a round of antibiotics I was proclaimed "cured." In late 1991 or early 1992 I developed severe pain, had difficulty with basic things. I was a new mom, and I was diagnosed with fibromyalgia. I battled this, learned how to do what I needed to do to take care of myself without over-exerting myself. About 2008 I found a tick with a telltale bullseye rash and it was confirmed that I had Lyme disease. A round of antibiotics and the doctor proclaimed me healed. In 2013, I got sick. I could barely move. The lab work showed that my white blood cell count was extremely elevated. This doctor said this was a flare-up of the Lyme. A month-long course of antibiotics followed. Soon after that, I got a flu shot. The flu shot, I feel, triggered the Behcet's Disease. I had ulcers in my mouth and nose, and on my skin. I had a positive pathergy test. I got a diagnosis soon after that. I was on steroids for a long time. I finally found a rheumatologist and she confirmed the other diagnosis and put me on plaquenil and tapered off the antibiotics. In 2015 I developed autoimmune hepatitis. More steroids and lots of accompanying stomach issues. I have learned to be very cautious and to try to take care of myself.