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Living with Behcet Syndrome. How to live with Behcet Syndrome?
Living with Behcet Syndrome: how patients cope day to day and stay positive - real experiences and practical tips.
Yes. I would say trying to do what you can to manage your symptoms and take care of yourself while also having some greater meaning/connection to the world outside of one's own experience of the disease is a helpful to having a more balanced and happy life.
Posted Apr 28, 2017 by bleach 1000
Of course you can be happy, it's about embracing g life daily and making the most out of days when you feel 100% well , supporting other people can bring you happiness when you have a bad flare up you can be happy in an inactive way by relaxing watching movies with friends , you create your own happiness
Posted Sep 13, 2017 by Fallenangelld 700
Do not focus on the disease. Try to keep laughing as much as possible. Don't talk about your disease to everyone, have a hobby, see your friends. Enjoy life as much as possible in between flares.
Posted Sep 17, 2017 by Carole-Anne Halsey 2000
Not let it win u need to be strong
Posted Oct 24, 2017 by Linda Egan 1500
Yes. Once you come to terms with it. Learning to not let it take over your life. Do not over do it on the good days. On bad days don't fight it, just listen to what your body needs. Acceptance.
Posted Oct 27, 2017 by Lyn 400
It's important to organise everything and keep listening to doctors prescriptions. It's possible to have remission and lead a quite normal life. But we can't forget about medicines, appointments and tests.
BD patients shouldn't exhaust themselves too much and be careful because a small thing can be like a sparkle that cause the explosion. That's why it's important not to umderestimate this disease and strictly follow the doctors orders.
BD patients shouldn't exhaust themselves too much and be careful because a small thing can be like a sparkle that cause the explosion. That's why it's important not to umderestimate this disease and strictly follow the doctors orders.
Posted Dec 11, 2017 by Monika 1160
An attitude of gratitude is best. Being grateful for the small victories and always know that this too shall pass. Every journey has a lesson and a possible testimony to those who are struggling.
Posted Jan 11, 2022 by Leah 900
I try not to tell others how to be happy especially after it took so long for me to find it. But I can say you must find Faith, Hope and Love. Do not be too hard on the world or yourself.
Posted Mar 15, 2022 by RonnieJ 3350
It is very dangerous when we compare ourselves to one another. My advice is to be the best version of yourself that you can every day. I also tell everyone to always place themselves first. When a lot of us are caregivers, we tend to forget about ourselves. I can't give the most to my family or outside responsibilities if I don't place self care first. People see it as selfish, but there's nothing of me to give if I'm not well.
Posted Mar 16, 2022 by Shelby 2750
Translated from spanish
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Heal to learn, investigate, comment, get to know other people
Posted Sep 17, 2017 by Salvador 2000
