Which are the symptoms of Behcet Syndrome?

Symptoms of Behcet Syndrome reported by real patients, from the most common to the most limiting, plus a medically reviewed summary with sources.

Posted Mar 15, 2017 by TeresaK 351

Oral ulcers

Posted Mar 15, 2017 by Joyce 401

My skin burning to the touch of anything. People , clothes etc. The painful ulcers on your bum! I'm dealing with that right now.

Posted Mar 15, 2017 by Terry 100

The ulcers and the body wide pain

Posted Mar 17, 2017 by Cyndi 100

I would say that the opthamological symptoms (inflammations and lesions in the eye) that can lead to blindness as well as neurological symptoms (brain lesions that can lead to personality and other changes) are most limiting, impactful and the first symptoms that I would prefer to be rid of. While other kinds of lesions (i.e. oral and skin lesions) are generally painful and uncomfortable and effect the quality of ones life, they are not as impairing as the eye and neurological symptoms.

Posted Apr 28, 2017 by bleach 1000

When the genital lesions extend to the urinary tract, and peeing is painful beyond childbirth.

Posted Jun 1, 2017 by PeninaD 100

The most common and often quite debilitating symptom is oral ulcers. For me, this was the first symptom I had. My entire mouth and throat were full of sores which were so painful I couldn't open my mouth. I still have some painful oral ulcers, however, the most debilitating symptom over the 40 years I have had Behçets is indescribable fatigue and chronic pain.

Posted Jun 16, 2017 by Cindy 100

Uveitis has to be the worst symtom for me currently, I'm fighting so hard to save my sight yet nothing seems to be helping. This would be the first symptom I would be happy to see go!!

Posted Aug 16, 2017 by Lucinda 400

The worst symptoms in my opinion are those connected to neurological system, because they can be very dangerous for patient. The disease can attack eyes, brain, limbs or any part of our body.
However, the most painful are the oral and genital ulcers, erythema nodosum (mine is healing very slowly and it's covered with bleeding wounds) and bone pain.

Posted Aug 27, 2017 by Monika 1160

Mouth ulcers are extremely painful and making even swallowing water painful. I would get rid of generalized pain and achiness, as well. For myself, the pain brings fatigue. This limits wanting to go around others which causes isolation. From here the horrible cycle of depression starts.

Posted Sep 13, 2017 by wdebwill 850

Mouth & genital ulcers, eye problems , joint pain with swelling , tiredness

Posted Sep 13, 2017 by Fallenangelld 700

Migraines. Skin problems: ulcers, inflammation, red patches. Joints inflammation. GI tract inflammation. Eyes inflammation

Posted Sep 17, 2017 by Carole-Anne Halsey 2000

All of it every part the pain and double failed hip replacement

Posted Oct 24, 2017 by Linda Egan 1500

They are all bad. My worst was vaginal ulceration, then joint pain,depression with the constant pain cronic fatigue.

Posted Oct 27, 2017 by Lyn 400

Ulcers so bad you can’t eat or drink or pee, so you end up in hospital on drips and catheterised. Bowel problems that are so bad they control how you live your life. Bone, joint and muscle pain so bad it leaves you in tears. The horrendous side effects of all the drugs you have to take. The depression that chronic illnesses cause........the list is endless.

Posted May 18, 2018 by Andrea 100

mouth sores, eye inflammation, skin rashes and lesions, and genital sores

Posted Jul 31, 2018 by Merve Deniz 500

Behcet's syndrome has so many symptoms. Most of the time it is mouth and gential ulcer. Yet they can range in everything from eye uvitis, to gastrointestinal issues, fatigue, and nerologic symptoms. It just varies person to person. The one symptom I would get rid of is the neurological attack on my nervous system.

Posted Jan 11, 2022 by Leah 900

Seizures, migraines, rashes, vision loss, not being able to eat, nausea and vomiting. Pain absolutely everywhere. Fatigue that feels like you have heavy weights on your feet. Confusion and memory loss for me were very limiting from what my life was before. I'd get rid of them all. I wouldn't want to trade really but rashes are more annoying than limiting, unless they get infected. My oral ulcers are not as frequent as what I've read others have but considering pain in my mouth is so intense, no thank you.

Posted Mar 15, 2022 by RonnieJ 3350

The symptoms that we frequently have the most problems with are the side effects from the medications that we take if it is regular Behcet's. A small percentage of BD patients have NeuroBehcet's Disease and it ravages out neurological system. It is so devastating that most of us with NBD are disabled. We get symptoms that can include the following: peripheral neuropathy, vascular headaches (think migraines and clusters had a child from h**l), vision disturbances, brain fog, and severe speach and memory issues.

Posted Mar 16, 2022 by Shelby 2750

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Canker sores on the skin, thrush genitals, uveitis

Posted Sep 11, 2017 by Guillermo Luis 680

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Joint stiffness, thrush, petergias, uveitis, vasculitis,...

Posted Sep 17, 2017 by Salvador 2000