Finally being diagnosed at the Mayo Clinic and having answers instead of being told there is nothing wrong
Air purifiers
Pacing
IV Rocephin, other abx (Dapsone, Mepron, Doxy) + FMT
repos
Low Dose Naltrexon+Antiviral
Wearing over the calf tube socks up to the knee gave me a lot more time per day that I can sit up!
Pacing
ketamine (temporary, not able to afford regular low dose treatment)
antivirals
rest rest and more rest
Began seeing Dr. Cheney in 14th year, after dx. Toxin-free living. Neuro & cellular protection.nKeep feet/legs elevated.REST.Avoid pharmas!
Resting in the darkness in a quiet environment.
Pacing
carnitine (or acetyl carnitine) in high doses - 1000 mg 3X/day
Diet (blood type then Myhill)
Learning to pace myself this lets me take part in the activity that is important to me.
Being able to rest frequently throughout the day
Hepapressin shot once a week (my Dr; Dr Derek Enlander NYC)
Finally accepting my need for a wheelchair.
low-dose Naltrexone - I was put on it last November and it has helped with my pain level better than anything else I have tried to date.
seeing my children
Rest
Rest
Complete rest from the beginning, lifestyle conservation of use of muscles
God is my strength and peace through it all
1L of Normal Saline every 2-3 days via IV
Keeping as active as possible. Even a minimal amount of exercise is better than none.
Pacing
Mold avoidance.
Escaping a moldy environment/moldy possessions
Controlling my energy levels which is and can be more energy sapping sometimes and as we all know sleeping extra makes not the slightest bit of a difference and people think thats all it takes to get better how i so wish that was true.
Mindfulness
Having a very supportive family, especially my wonderful husband and son, and not forgetting the dogs!
support & belief from some people
Amitriptyline
Hyperbaric Oxygen Therapy at the MS Therapy Centre in Leith. This has made a huge impact on my life.
Meditation - to calm anxiety
Rest and staying within my energy envelope
Anti inflammatory diet
Vertogoheel, a Homeopathic remedy helps me to stand up a little easier.
A physical therapist who understood connective tissue diseases.
Cell food by nu science has helped chronic fatigue gotten rid of many symptoms
Magnesium & oils
Listen to your body.
Understanding that I cannot push my body in the way we are all taught. Knowing that physical and mental exertion have consequences for every system of my body. Agressive rest and pacing.
Have a good consultant that listens