Xyrem changed my life for 10 years, made me have almost no pain, didn't feel like a train had run over me every morning, but now, due to FDA, doc refuses to prescribe it!
Daily meditation practice for 24 years., since I got sick. Meditation allows me to change my physiology through the relaxation response. It helps balance mood, pain. And, it gives me a clear space to just be- and this gives me hope to keep going another
Stretching exercises, ideally every day; long walks when possible; swimming in the Y lap-pool (cool temp really helps pain!), general exercise when I can tolerate it, the spa and steam room; when I can afford it a massage.
Acceptance. Accepting my disability and how it will affect my life has really helped. This isn't a cold or flu that I can get over, this is my life forever.