My Wife studied and found a natural highly absorbable vitamins and nutrition that I can use in my tubes.
Bisoprolol (Beta blocker medication)
Exercise and yoga
Banning all fragrance and strong-smelling cleaning products from my home
Pain medication
Strict natural/wholefood diet cutting all sugar/sweeteners and processed foods & drinking lemon water
Making myself usefull within my limits makers me happy.
I don't drink alcohol
Supportive Family
Finding the right Dr. Who dosn't just chase numbers, switched from Synthroid to Armour Thyroid.
Financial security and no stress
NOTHING helps, tried numerous therapies, etc, under HMO physician's care
5 months of LDN low dose naltrexone 4mg (started at 1mg and gradually raised to 4mg) Improved stamina and went from 90%bed bound to 90% house bound
Massage therapy weekly
I am very careful not to do too much.
Not working or doing something when impossible.
Finding a PCP who was aware of the disease and diagnosed me.
PACING, identifying energy envelope and then 'doing' with scheduled rest stops, can now do more
Sleep.
Extreme pacing and a quiet home where I spend most of my time
Resting and sleeping as much as I need. Figuring out my average number of active hours a day and not doing more than that--even on my good days.
cognitive behavioral therapy (reality acceptance)
Medication that helped me get sleep (Trazodone)
Improving the quality and duration of sleep (amitriptyline, no alcohol, no screens)
Testing for hidden food sensitivities should be a priority. Leaky gut syndrome is a real thing! Multi-strain probiotics!
Acceptance and family support
Discovering food sensitivities and avoiding those foods
immune globulin
Diet, no sugar, dairy, gluten, anti candida diet
Eating clean food
Drinking Gatorade daily to boost my blood volume
Pacing
Plenty of rest
Savella helped with the muscle pains
Being able to lie down to rest/sleep when my body needs to. And be able to rest/sleep for days at a time.
Being diagnosed early (at 7 months)
Eating a healthy diet.... No alcohol, sugar or gluten
Ldn (low dose naltrexone)
Rest
Trying to be kinder to myself and not talk to myself in a way I wouldn't do to another person
Pacing myself
Drawing
Vyvanse for CNS Stimulation
Meditation
Drinking water
Healing
family help and support