Rx: Low Dose Naltrexone & Zyrtec D (Stimulating Antihistamine)
Diet: low carb, medium protein, high fat and esp. no wheat
Plant based diet with omega 3
Anti depressant
My doctor knows that no pain control med works on every kind of pain
Ashagwanda
Rest often
pacing
LDN Low Dose Naltrexone
LDN
Only thing that has helped is Xyrem, but due to FDA, doc refuses to prescribe! ANGRY!!!
Getting rid of toxic people in my life
Being grateful for the things I can do and trying not to get too upset about the things I can't.
Walking
Sleep medication for insomnia.
ME/CFS: Pacing, Pacing, Pacing with daily 1-hour per day total rest, 2 days per week of rest & Limiting activities to 2-2 hour activities per day
Multivitamins, D-Ribose, Glutamin, B12, Vitamin D, Schussler magnesium phosphoricum, Q10, Astragalus, Populus Nigra, Bio-carnitine
Mitochondrial supplements
Sleeping medication
After years,was given funding and care through Social Services, various physical aids and personal care eased my PEM and helped me achieve a sense of baseline level
Gupta
Knowing that there is finally a decent body of research going on into understsanding and possibly curing my disease.
Addressing the sleep disorder- absolutely fundamental. Whether Rx , herbal, homeopathic.
Support of friends
Staying away from alcohol and rubbish food
Pot tinctures; pot-infused topicals; high CBD/low THC strains for moderate pain; when NOTHING ELSE WORKS for body-wide acute pain...opiates. Vicodin helps short over-the-top flare-ups, 10mg OxyContin 2x/day for longer flare-ups for better quality of life
Toby Morrison's programme.
Probiotics and other nutritional supplements
Low Dose Naltrexone
Surrounding myself with supportive people
Friends who understand and don't believe I'm faking it.
Commution and understanding. Finding a group of people to talk to who understand what it's like to be young and chronically ill has definitely helped me fell less alone and more understood.
Saw 3 ME specialists. Tried LDN, pacing, antivirals, supplements, diets, rest, POTS meds, etc.
Brush your gums, tongue, inner cheek skin and when in a flare rinse with hydrogen peroxide before bed.
Dialysed Lymphocyte Extract Transfer Factor - experimental treatment
STRESS/FREE ELECTRON REDUCTION (bare skin to Earthing Mat or ground 2 or more hours daily, meditation)
avoiding potentially stressful situations
Duloxetine aided sleeping at night
Glutathione IV
modafinil
Enjoy & take pleasure from the little things in life.
Medication
A Nurse Practicioner who researches and understands my condition
Wellbutrin
Solitude
Keeping my mind active through activities such as knitting etc
Nothing
Been forum member for help and support