Living in the moment
Friends who support me
Stopped going to gastros and GPs after about 5 showed their ignorance of the syndromes
Acceptance
Supportive husband and kids
The love and support from my mother and daughter
Music. Singing. Hot baths. TIME to renew my strength
taking genetic/DNA tests to discover mutations and/or health risks
Surgeries
Dietary Changes
My Wife
Family
Love and support.
Pacing is a myth. I've only been diagnosed a year, but I've been suffering for at least 15 years, and have always been very active. I've been ignored, and tried to push through it. If pacing and exercise worked I'd have been cured years ago.
Avoiding wheat, sugar, coffee.
panodil has help
Resting when I'm tired
Questioning doctors questionable advice
Low dose Zovirax, tons of supplements
Caregiving partner.
Having documented medical prof of how very ill I am. Thanks to the Open Medicine Institute.
Dr. Sarah Myhill's protocol and Dr. Jacob Teitelbaum's as well...big help.
Inosine supplements seem to help
elimine de mi dieta la harina ,maíz y comida procesada
EFT, emotrance, other techniques to feel my body and get in touch with my emotions
Lots of rest
Rest
taking the right supplements eases pain
Stretching
And more pacing
Having a good support system
Coffee shops
Accepting that I AM ill, allowing myself to rest more deeply
No more than 3 hours of high activity a day else i am wiped out for weeks
Morphine
Living a quiet, slow, dim life existance on a daily basis: bedfast 80% of day....Boring!
Tai Chi, Yoga.
Connecting with other sufferers on Facebook
Ketamine Infusions
Use of Wellbutrin (lower fatigue, improved sleep, and decreased pain), low dose Klonopin (sensory over-stimulation), and Trazadone, as needed (sleep) have improved my ability to work.
Learn to be kinder to myself!
good meals but what you fancy on that meal time
Clean air, clean food, clean water
Slimming World
Sleeping.
Positivity
Combo of Lyrica and low-dose naltrexone have reduced my pain from unbearable to mild
finishing work
Watch what you eat, make sure your Doctor knows all about your disease and knows exactly what to check for.