Which are the symptoms of Duane Syndrome?

Duane Syndrome is a disease that affects the eyes. It mostly is due to muscles that have grown to the wrong side of the eye. There are several types.

Many have lack of eye movement, headaches, neck pain, as well as other genetic anomalies.

I find that the worst thing about duanes is not being able to see to the sides. It's restricted me personally a lot. Especially in school during sports etc. This has affected me a lot, and because of my restricted vision I am not aloud to drive.

I have dealt with many struggles with Duanes, my vision corrected with glasses are 20/35 and 20/45. I have type 1 which is the most common, although my right eye is affected along with nystagmus. I have to tilt my head while driving, getting my license was not easy but I’m thankful that I can live life and enjoy coming and going as I please.

I have never had surgery on my eyes, the doctors pushed for me to at age 7 (I was diagnosed at 1 years old) and I wouldn’t have it. I don’t believe the surgery would have been successful due to my 6th cranial nerve not being connected to my brain. It would have been strengthening the muscles which could have resulted in a swaying eye.

During my early childhood I was picked on, a lot due Duanes Syndrome. I was put in academic support classes as well, which means I had an IEP. Reading and being able to concentrate on things have always been very difficult, but I made the best of it. I did graduate in 2013 with a 3.2 GPA, while pregnant. With Duanes I also have neck/back problems following with headaches from the head tilt.

I have learned to do many things in different ways, I love living with Duanes Syndrome - I love being rare.

Ur eye being messed up