Story about Ectodermal Dysplasia .

Vincent, HED

Apr 2, 2016

By: Caroline


My son is born in 2000 and he was diagnosed HED when he was 9 months old.  Pointy teeth, no hair, no sweating.  He his now 15 and doing fine with who he is.

He know he is love for who he is, and he is a sweet, loving, caring, gamer guy!

 

Caroline, proud Mother of Vincent HED and Daphné

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