Epsom salt baths
Anti inflammatory diet
Naproxen painkillers
Planning ahead gives me things to look forward to
Wheelchair
A physical therapist who understood connective tissue diseases.
Having a sleep number bed
Cell food by nu science has helped chronic fatigue gotten rid of many symptoms
Correct diagnosis of Ehlers-Danlos Classical helped me to know I'm NOT crazy and it's NOT all in my head!
Finding hobbies that fit my physical abilities.
My husband who is my best friend and fulltime carer.
An understanding GP after diagnosis.
Knowing my diagnosis
Horseback riding.
Physical Therapy (with a PT who already knew EDS really well)
Knowhow
Mindfulness, I learned about this on pain management at Walton Centre.
Bisoprolol (Beta blocker medication)
Trying to stay positive.
Ivig
Finnaly a doctor who knew..
Tramadol has increased my capacity to tolerate pain
Adequate rest
Finding an exercise I can do
Good strong friendships.
Love and snuggles from my husband.
Relax more
Butrans Transdermal Patch has made my pain manageable.
Coming clean to my family about how bad i really feel. Allowing them to support me instead of taking this on alone.
My son for loving me and keeping me distracted.
Marajuana
My family and support I get from them
Mindfulness, low stress life, positive attitude
Going paleo, cutting all grains, dairy, legumes and most seed oils. It's reduced my pain and fatigue, I no longer need a nap every day only a few times a month.
Toradol injections and IV fluids for severe migraines
Finally properly diagnosed,taken seriously and no longer being accused of attention and drug seeking.
Naps, naps, naps!
My husband has been my supporter and my voice
Using a rollator had enabled me to build back muscle and to have me pain as well as undo some of the damage using a cane had done
Oxynorm helps but I only take when I'm crying. I don't like pain meds.
Lots of research
Psykomotor geneticist
KT taping
Knowledge that many health events were actually connected and are VEDS
Yo no confundo la aceptación con la pereza, Aceptar simplemente significa que entiendo plenamente mi situación pero sin embargo tengo la capacidad de trabajar para mejorar mi calidad de vida.
Painkillers
The support of those around me
Not exceeding your body limitations
My friends and pets <3