Help us to help more people
  2. Ehlers Danlos
  3. Advice
Plant Based Diet
by eds
My family as we all suffer so we fight EDS together
by Sharon
My daugther has elhers danlos syndrome
by Lindsay
Honestly, my husband who makes me take meds and rest when I need to
by Brittany
Epson salt
by Michele
Topical real time pain relief lotion
by DeLenna
Family n friends who support me
by CHRISTINA
Cronical pain
by Amanda
Feeding the birds on my patio, brings me great joy, I feel needed & having beautiful songs throughout the day.
by Deborah
Pain medication
by DMgirl
Moving in with friends who understand my limitations and do all of the things that I can't.
by Lisa
Broth
by Krystina
Un tiempo me ayudo la duloxetina hasta q tuve efectos secundarios
by Estefania
TENS unit
by Jeniah
Finally found an excellent counselor who has helped me immensely with depression, etc.,
by va2vt
A Good GP who refers to specialists if needed.
by Cissi
My service dog
by Life_Line
Having someone with me at all times.
by Lindsey
Valdoxan [Agomelatine]; immeasurably aids my sleep quality as well as treating anxiety & depression. Both of which have sleep issues at their core as well.
by Jandc
Finding a Complex Diseases Management Specialist
by Jenna
Reposo
by belen
Compression tights - they help so much
by Julie
Sodium cromoglycate
by Dottywoman
I tried to kill myself in November 2018. The resulting inpatient stay set me on my road to recovery.
by Declan
Researching my ADHD independently helped me manage my symptoms.
by Lavender
Surgery helps with Ehlers Danlos and is worth it in my opinion
by Amy
Pacing
by alexanderyanj
gua sha
by Gramarye
Intrathecal pump with Prialt
by EmJ
My Vogmask! I can breathe outside without having symptoms, and just get on with my life.
by Ouch Mouse
Knowing my limits!
by Beanie300
Tramadol makes me able to function on a daily basis!
by Inuwure
Splints, braces and compression clothing
by Karen
using a wheelchair
by amandalynn
Physical therapy
by MegTheMariner
My always caring and supportive partner
by Alex
Cuidar de mi salud mental supuso un gran cambio en mi vida
by La Zebra
Tramal, Benadryl
by Olga
Getting regular exercise, especially outdoors
by Penni
Eliminating scented products from my life
by Liz
Saroten
by Ida_falkman
Going to Cincinnati Children's hospital
by Macy Mae
Nadar
by Mercedes
Finding my birth family and helping them understand and know whats going on with their health
by Shawna
I've had no luck with doctors.
by Stephanie
Getting Dopamine in my brain fixed my sleep cycle
by CalamityJane
Taking control of my life and medical care.
by M
Gabapentin
by Riven
A great Physical Therapist
by Foofurr
Getting a mobility scooter
by Jasmine