Exercise every morning
Mis hijos con el mismo síndrome , tengo que estar bien para ayudarlos
Corgard (Nadolol) 2x40 mcg
Mast cell stabilizers, particularly ketotifen
No me puede anticuagular
Baths are and always have been #1 for increasing my mood.
Keeping a positive attitude
Rest and relaxation
Applying for long term disability.
Swimming
Diagnosis-thanks Dr Hakim
Writing a book based on true stories of chronic illness, chronic pain, rare diseases, and PTSD.
A hysterectomy helped my pain spikes.
Apoyo familiar
Ehlers danlos and PoTS fighter
My boyfriend;
Daily workout followed by half hour in hot tub
Keeping busy keeps my mind off of pain.
Butrec 10mcg patches
Turmeric has helped me a lot with inflammatory type and musculoskeletal pain
My dog
Focusing on nutrition and taking nutritional supplements.
Being a Jehovah's Witness and learning from the Bible that we do have a hope for the future helps me stay positive
Accepting who I am.
Dog obsessed
Heating pad
Diagnosed at CNMC at twelve.
Fired toxic people from my life
One doctor changed my life by really looking at me
Severely effected.
Medications
Increased water intake
Le Fort 1 Surgery helped for about 9 months
Oxygen thérapie helps me with pain and insomnia
one excellent pain relief is blue emu oil or a cheaper english version blue comfort (found on amazon)
My faith in God
My faith in God
Beeing diagnosed
Supportive family
Music
Accupuncture and massage
Exercise
Saber sobre a Síndrome me trouxe tranquilidade.
Taking routine naps
IVIg - increased energy, decreased pain, decreased GI symptoms
Always keep moving
Prolotherapy injections
Supportive family