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  2. Ehlers Danlos
  3. Advice
Pain Management
by Cindi White
I love metal music. And it's my favorite escape from the pain.
by Ina Hansen
Wheelchair
by Jari Nordman
My husband who supports me
by Julia
Facebook groups
by Laura
Family and friends around me who believe and listen and fight with me and for me.
by Maarit Bäckman
Water Aerobics/walking in a pool
by Andrea Dodge
My husband who does everything for me, even houshold
by Lut
Topirimate for migraines
by susan cook
Medication
by Katie
Good team of doctors.
by Scarlett Myers
Shaklee regime for cancer has helped with the eds too, it is expensive but worth it
by Georgia Weaver
My support network of loved ones
by Annika Vander Kooy
Heat packs
by Emma
[email protected]
by Liduina Freire - Swiss EDS Patient group
Helping others
by Julie
Salt
by Raelynn
Spoonie friends
by Stephanie
i have fentynal patches
by Dianne sharp
regular pool PT
by Lindee Taha
Practicing mindfulness and other Buddhist philosophies
by AJ
Eating mostly vegetables, no pasta, no bread, little meat (chicken) no/little sugar helps me to not gain weight though I hardly walk anymore; no exercise whatsoever.
by Xandra Koster
My family for helping me in dayly activity.
by Nina Sivertsen
rest when needed
by Mai
Different braces like wrist and finger braces.
by Ninja Paunonen
Positive attitude
by Bridget
Facebook groups
by Lynda Ward
Braces for my worst joints
by Missi Stone
transdermal high potency b-12 patches have helped my energy
by Margo
Keep your body active
by Kjartan Horne
Braces
by Michelle
Pain management
by Sarah
Floating in a warm Epsom salts bath.
by Debbie
My daughter
by Sara
I definitely feel better when I eat a balanced diet, drink plenty of water and get enough sleep.
by Sherry Hickman
love
by Kelsey Roberts
Finding others who are like me.
by Courtney
My meds (too many to list)
by Angie
A nice warm bath
by Andrea
Florinef for dysautonomia
by KK
Good support network
by Courtney
The correct combination of pain meds and a good pain specialist.
by Hannah
Wonderful EDS-Scotland support group
by Gwen Nelson
Having a supportive husband
by Laura Dark-Bell
support from family
by christy hacker
Decompression, Tethered Cord Surgery, EDS diagnosis by experts in NYC - No local medical knowledge
by Carrie Ann Juraska
Healthy diet and exercise!!
by Annahliese
Finding support online- support groups, or just others suffering with chronic disease and similiar drastic changes in our circumstances is a comfort
by Beth
Weekly massages help keep the muscles in my neck and shoulders from knotting up to badly.
by Susan G
Art
by Julie Calvert