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Ehlers Danlos
Advice
Advice of Ehlers Danlos
I have my family by my side
by Angelica
Med. Marijuana or Fentanyl lollipops
by Fey
Oxygen
by Anonymous
Treatment for POTS and OI
by Jennifer Sanders
My physiotherapist who taught me how to put my own joints back into place after a dislocation. This has over the years prevented many trips to A&E!
by Lise Gerrard
Pain psychology, self hypnosis, distraction, meditation
by Janel Price
connective tissue massage
by Toni Rakestraw
Physical therapy
by Terrianne
support from my husband
by Bryn Prough
Having a gastric electric stimulator implanted last year to help with vomiting
by Rachael Knie
Massages and Tanning Beds
by Brooke
Bladder instalations as needed.
by Mary Walsh
My amazing mum for always being there to support me!
by Lauren Curtis
Reduction of stressors
by Mindy
Hooping
by Lacie Walker
Never giving up
by Caroline towler
Pyjama days
by Abigail
Planejar - planejando seu tempo e suas atividades, assim você sente menos fadiga
by Desiree Novaes Pimentel
Get help when you need it..... my mum helps mee with my kids and housework twice/three times a week.
by Gemma ballantyne
Conversar com outras pessoas que possuem SED
by Sarah
Exercicio
by João Sequeira
being believed
by marianne mcnally
Trouver un médecin qui connaît le SED et se sentir soutenue et comprise du coup
by Sandrine
Understanding the syndrome
by Diane Taylor
My family who give me support, strength and encouragement
by Becky
Therapeutic marijuana can help for not breaking down
by Kaya
Having my fiancé and family there to support me no matter what and joining Facebook group for the condition
by Shini
not letting the disease/condition win
by Sophie
My parents always stand behind me
by Vikki
Getting a diagnosis
by Elaine Taylor
oxigenotherapie pour la fatigue et douleurs
by esperance
Persistent if I don't feel right
by Rebecca
my pets and the people in the dogtraining community
by Anna Mai Nattestad Joensen
Pregabalina e amitriptilina
by Marcia Ribeiro Cavalcante
Understanding my conditions to enable me to manage myself to prevent worsening my symptoms
by Helen Butcher
Saline IVs
by Kristen
My family are my world
by N C
Allow yourself to ask for help
by Marie
Hot baths with Epsom salts help my relax
by Gamble
Water exercise
by Heather
Acupuncture
by Jenn
Music
by
Recognizing oncoming syncope and reacting quickly to avoid injury and embarrassment
by Amy A
Diet
by Audrey Holdread
Exercise in general
by Stephanie
Mobic as needed
by Tareena
Ionized Foot Detox - Clean unwanted mineral Toxins from my body
by Adina M
Living in an accessible home
by Marion Steele
my mom who is always by my side
by Sarah
No lifting anything heavier than a milk jug
by Katie Washburn
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