I have my family by my side
Med. Marijuana or Fentanyl lollipops
Oxygen
Treatment for POTS and OI
My physiotherapist who taught me how to put my own joints back into place after a dislocation. This has over the years prevented many trips to A&E!
Pain psychology, self hypnosis, distraction, meditation
connective tissue massage
Physical therapy
support from my husband
Having a gastric electric stimulator implanted last year to help with vomiting
Massages and Tanning Beds
Bladder instalations as needed.
My amazing mum for always being there to support me!
Reduction of stressors
Hooping
Never giving up
Pyjama days
Planejar - planejando seu tempo e suas atividades, assim você sente menos fadiga
Get help when you need it..... my mum helps mee with my kids and housework twice/three times a week.
Conversar com outras pessoas que possuem SED
Exercicio
being believed
Trouver un médecin qui connaît le SED et se sentir soutenue et comprise du coup
Understanding the syndrome
My family who give me support, strength and encouragement
Therapeutic marijuana can help for not breaking down
Having my fiancé and family there to support me no matter what and joining Facebook group for the condition
not letting the disease/condition win
My parents always stand behind me
Getting a diagnosis
oxigenotherapie pour la fatigue et douleurs
Persistent if I don't feel right
my pets and the people in the dogtraining community
Pregabalina e amitriptilina
Understanding my conditions to enable me to manage myself to prevent worsening my symptoms
Saline IVs
My family are my world
Allow yourself to ask for help
Hot baths with Epsom salts help my relax
Water exercise
Acupuncture
Music
Recognizing oncoming syncope and reacting quickly to avoid injury and embarrassment
Exercise in general
Mobic as needed
Ionized Foot Detox - Clean unwanted mineral Toxins from my body
Living in an accessible home
my mom who is always by my side
No lifting anything heavier than a milk jug