Help us to help more people
  2. Ehlers Danlos
  3. Advice
Therapy
by Jesse
My wonderful orthopedist/EDS specialist, PRP therapy, Aqua PT
by Jane
My mother always advocating for me even though she has it too.
by Elizabeth
Ring splints for my fingers
by Darla Sanders
Watching more comedies on TV has increased my joy - laughter helps with pain control.
by Susan Eskdale
Support from my family
by Ehlers Danlos Syndrome
LDN
by Kari
I'm an advocate for multiple Rare Diseases.
by Tamira Bridge
Wear face coverings in windy, cold, or environments with flying particulates. (Trigeminal Neuralgia)
by Fred
Being under the right doctors knowing where to go and who to see regarding certain problems.
by Sam
Water therapy, cycling and yoga
by Jan Groh
A comprehensive evaluation serves as the foundation for my care management plan.
by Angela
Weaving chainmaille jewelry has given me purpose again
by Mary L.
504 plan @ school
by Theresa/Brooke
A healthy diet
by Chris
Manual Physical Therapy
by Alicia
Moderation of activities
by Jessie Marie
Rest & patience
by Carole
Une journée ´cool' dans la semaine
by Cindy
Heat pad
by Sarah
Learning to let things go so my stress level stays reduced
by Kitty
Eating well - sticking to what makes me feel good
by Tamara
Lowering my expectations of my energy levels
by sarah glynn
Stay possitive with laughter practice at yourself and the quirky body .
by Sandy
My husband thinks I'm awesome amd strong
by Christie
Corage. It's a heart medication. It stopped my 5 year headache.
by Sylvia
increasing fluids
by Vicky
Supportive GP who wants to help me have a good quality of life
by Jessica
Support of friends and family
by Emma
Master cell medication: ketotifen
by Ellen
Learning to pace myself
by Nancy
To have understood why I had had so many health problems all my life long
by Alicia Flors
Painkillers
by Hazel
Taking correct medication on time
by Stefani
Finding a pain management doctor who actually listens
by Carly
The correct diagnosis
by byoung353p
my doctor and medications
by Tanya
Marijuana
by Janet
keeping positive with a smile (even if fake)
by Cheryl
good support network
by Rachy
Doing things that I love such as dancing, eat out with friends
by Greige
Pain management
by Alexis Hanson
Light exercise
by Vicki
Doing sports
by Nicole
A good medication regime
by Emily
Diagnosis and Acceptance of diagnosis.
by bitteralaska
Restorative yoga.
by Deborah
CBD vape
by Linda
Having a supportive husband
by Christina
Having others online to compare notes with and confide in when it's really awful.
by Shannon