A very supportive wife and two beautiful daughters.
Think positive
Having a great support system of online friends.
Antispasmodic / muscle relaxer
My amazing supportive partner who helps me care for myself
Doing things on my time
Vitamins
The right medication balanced with alternative treatments like soft tissue occupational therapy and chiropractic
Video games help to distract me from the pain and help with depression.
Joint support
Adderall has immensely helped my fatigue.
Getting a GP who is proactive and genuinely interested in making me better, not just masking my problems or pretending its in my head.
My husband calming me when in a panicked Migraine state.
Cutting bad carbs
Clean eating
DIET!!! I would still be on medication and feeling like crap if not for a paleo diet
Finding new hobbies, I used to bike and run and did a lot of theatre, now I write songs, crochet and knit and am learning stop motion animation. Life doesn't stop, it changes
Neurotin and pindolol for prevention and to help with tachycardia
Support from my GP and surgery
A good soak in the tub.
Support groups are great to turn to
Having access to medical care and specialists is critical
Hot water bottles, Epsom baths and tens machine.
My husband that keeps me sane
Light workout
prescription strength braces
There are relations that I don't know who might have VEDS and I want to help them.
Dominic
En vez de pensar en las cosas que ya no puedo hacer, pienso en las cosas para las que soy buena buscando siempre descubrir nuevas fortalezas
Heat pad
Finding a new passion that fit with my new limited lifestyle
No gluten or dairy
Low histamine diet
Regular sleep patterns
El Cronus al aliviarme un poc el dolor me da energía
Eating less dairy and gluten
Mi mama siempre esta conmigo apoyandome y cuidandome
Surrounding myself with friends and those who care for my well-being.
Keeping an alkaline diet
Limiting intake of food
Getting more rest.
Acupuncture
My daughter Jen-so much support and understanding-she's diagnosed hEDS too!
A good support system: wonderful husband, daughter, family, and friends.
Pain management has been extremely helpful.
Ejercicios
High school bullies
Research and Facebook Groups of EDS.
Gentle hugs from my kids
Trying to avoid sugar keeps my stomach from hurting so badly.