Help us to help more people
  2. Ehlers Danlos
  3. Advice
My amazing PT and OT's
by Caroline
staying positive despite a lot of conditions
by bobbi
A Nurse Practicioner who researches and understands my condition
by Helen
Strengthening muscles to support joints
by Briana
warm climate
by LeighAnn
I am receiving treatment from a naturopath for lacking nearly every hormone.
by CynthiaS
Controlling chronic migraine with Topamax
by hedsbk
My supportive bestfriend
by Crystal
love of my family
by titchyditchy
Validation of a real struggle by receiving a diagnosis
by Barbara
Losing weight and eating better
by Rckygrllaura
Medication
by Heather
Having a good physiotherapist
by Victoria
Supplementation
by Judy
My service dog
by Lynn
Amino Acid Therapy
by Jeff
Subcutaneous IgG
by ck1
Eating healthy
by Donna
I have EDS also!
by Caz
Massage!
by Angela
Using a wheelchair to conserve energy, walking when I really want to.
by davidsmit
Massage helps too, not a hard deep tissue massage but more of an Aromatherapy type.
by Shane
Pain killers
by Tianne
Undiagnosed MCAS
by Joanne
Acceptance
by Juliet
Good doctors.
by KB
Pace yourself - set a timer on your phone. It doesn't matter if you don't do all the housework in one go - break it up into small tasks over the week
by Shelly
As 'rare' as it is, my hubby also has EDS. He can relate to how I feel, so I don't feel AS misunderstood as sone people with EDS feel.
by Kacy
Massage
by Ellswim
Pain medication
by Frankie
My amazing friends and girlfriend.
by Elizbuch
A supportive, understanding husband.
by Patty
wheel chair
by Brenda
wheel chair
by Brenda
Cbd oil
by 1wildflwr
Stopped narcotics.
by Yvonne
a nice warm bath
by solvi474
My family is really supportive
by CenBrennah
Medication
by stairphobe
A primary care physician who had an open and curious mind and wanted to fight by my side.
by Rubiegem8280
I always feel better when I walk regularly
by Melanie Barnett
collagen powder has helped with joint pain
by Josette
Online support groups keep me "connected"
by jahewa
Meditation
by Breanna
My Dog, she stays with me when I am sick and bedbound and is a great source of comfort.
by Lette Moloney
Trying to be positive
by Paula
Physical therapy
by Haven Erb
I've stopped feeling pity for myself.
by Kristine
Floating in the pool is magic
by Shannon
If my parentes had known what I whas dealing with
by Maja