Help us to help more people
| View more
View more
Toggle navigation
Ehlers Danlos
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Ehlers Danlos
Advice
Advice of Ehlers Danlos
The love and support from my children that brightens each and every day that I face.
by Jennifer Lynne Kremenik
Educating myself on eds-h.
by Trude Rabaas
My supportive family
by Lesley Armstrong
My Osteopath, don't know what I'd do without her
by Dani Barrington
My family and boyfriend. They are supportive and understanding.
by Marian
Hot bathes.. seriously. I know this isn't a treatment but coming home from work and being in pain is hard but soaking in a hot bath really eases it for a bit.
by Holly
Strong fight attitude
by Jennie stewart
Seeing a geneticist
by Joyce Hayward
Oxygen
by Jennifer
regular meals
by Krisa
my children and grandson
by caroline
Feeding tubes - both the J tube for feeding and G tube for venting/draining
by Brianna Long
Good sleep and good medication. Distraction too
by Stripystruggles
Medication
by Stephanie
My mom and caretakers that help me fight to get help
by Mihaela Isaksson
Regular muscle work alternating with acupuncture.
by Nancy Ramsdal
A strong support team i.e. Family and friends
by Jessica
my partner who loves me so much and it makes me feel more beautiful
by Serena
Find the right doctor
by Vale
Constantly tweaking my diet and never give up trying to find answers.
by Deborah Drake
TENs unit - my doctor prescribed this for me so I have my own unit at home. It really helps with the pain.
by Patti Moonis
Change of diet to free from foods, no sugar or processed foods.
by SAM
Lots of sleep and Rx Eszopiclone
by Diane Jackson
Sleep gives body recovery and energy
by Katie
InterX device
by Flora Langel "Naanad" DeKock
Sushi. It is one of the few foods that gets along with my Crohn's
by Joshua
Finding support groups on Facebook
by Lois
Finding support groups on Facebook
by Lois
Have an amazing support system that includes specialists as well as a general practitioner
by Michaela
cannibus
by Sarah
shunt placement
by April
I have three kids one with Celiac disease.
by Michelle
Midodrine
by Jessica
Having my family understand what an invisible illness is and having their support really helps.
by Terri
Going to see doctors that actually understand me
by Meagan
A awesome medical team
by Jenny
Pacing, pacing, pacing.
by Sarah
me an my dad fight Ehlos Danlos together!
by Kirsty
Tiger Balm, makes a difference on many joints and my back
by Lorelai
SLEEP!
by Hannah
Keep a symptoms journal
by Emma
Finding something that makes me feel worthwhile that I CAN do (metalsmithing, teaching)
by Lori
Finding the right GP who understands the condition.
by Louise
Massaging my belly in a circular motion will help to move my system sometimes.
by Tanya
Tiger balm regularly on neck and sore joints
by Cin
Mestonin
by Michelle
my electric blanket
by Gabrielle
At least 6 grams per day of sodium helps a lot, and since I hang onto water better, I can reduce my liquid intake to around 6 liters.
by Ginny Ickle
Brisk walks
by Diana
Brilliant rheumatologist Dr. Barber
by Max
<<
<
9
10
11
12
13
>
>>