The love and support from my children that brightens each and every day that I face.
Educating myself on eds-h.
My supportive family
My Osteopath, don't know what I'd do without her
My family and boyfriend. They are supportive and understanding.
Hot bathes.. seriously. I know this isn't a treatment but coming home from work and being in pain is hard but soaking in a hot bath really eases it for a bit.
Strong fight attitude
Seeing a geneticist
Oxygen
regular meals
my children and grandson
Feeding tubes - both the J tube for feeding and G tube for venting/draining
Good sleep and good medication. Distraction too
Medication
My mom and caretakers that help me fight to get help
Regular muscle work alternating with acupuncture.
A strong support team i.e. Family and friends
my partner who loves me so much and it makes me feel more beautiful
Find the right doctor
Constantly tweaking my diet and never give up trying to find answers.
TENs unit - my doctor prescribed this for me so I have my own unit at home. It really helps with the pain.
Change of diet to free from foods, no sugar or processed foods.
Lots of sleep and Rx Eszopiclone
Sleep gives body recovery and energy
Sushi. It is one of the few foods that gets along with my Crohn's
Finding support groups on Facebook
Finding support groups on Facebook
Have an amazing support system that includes specialists as well as a general practitioner
cannibus
shunt placement
I have three kids one with Celiac disease.
Midodrine
Having my family understand what an invisible illness is and having their support really helps.
Going to see doctors that actually understand me
A awesome medical team
Pacing, pacing, pacing.
me an my dad fight Ehlos Danlos together!
Tiger Balm, makes a difference on many joints and my back
SLEEP!
Keep a symptoms journal
Finding something that makes me feel worthwhile that I CAN do (metalsmithing, teaching)
Finding the right GP who understands the condition.
Massaging my belly in a circular motion will help to move my system sometimes.
Tiger balm regularly on neck and sore joints
Mestonin
my electric blanket
At least 6 grams per day of sodium helps a lot, and since I hang onto water better, I can reduce my liquid intake to around 6 liters.
Brisk walks
Brilliant rheumatologist Dr. Barber