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Which are the symptoms of Familial Adenomatous Polyposis?

Symptoms of Familial Adenomatous Polyposis reported by real patients, from the most common to the most limiting, plus a medically reviewed summary with sources.

Familial Adenomatous Polyposis symptoms
7 answers
extra teeth and polyps

Posted May 18, 2017 by Holly 2000
There are no symptoms if discovered early

Posted May 19, 2017 by Daniel 2570
The worst symptoms of FAP are blood in the stool abd pain of abdomen.
Blood in the stool was my first simptom, and about two years after my first simptom i felt pain in my abdomen.

Posted May 19, 2017 by Amina 200
Precancerous polyps that will become cancer.
Having constipation, diarrhea or a combination of both.

Posted May 29, 2017 by Mechelle 300
The fear of adenocarcinoma and more major surgeries. The effect of it all on my significant others is a massive worry. For me, this disease has ledcto me having over three quarters of my GI tract removed, leading to extensive adhesions, hermias, fistulae...I now have a TPN feeding line and short bowel syndrome.

Posted Sep 9, 2017 by Beverley 500
The chance of cancer is probably the scariest symptom. The most painful is the IBS and other gastrointestinal problems. Osteomas can be another painful, but benign symptom of FAP.

Posted Sep 28, 2017 by Jennifer 1600
For my son it has been bleeding from polyps. But we have not dealt we th so many symptoms that others have. I wouldn't say cancer is a symptom, but of course it's the worst. There can be so many problems with decreased nutrient absorption, nausea, diarrhea and none of this gets better with "treatment" to remove more organs and tissue to help prevent cancer.

Posted Sep 29, 2017 by ChristiDarty 1300

Familial Adenomatous Polyposis symptoms

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World map of Familial Adenomatous Polyposis

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Stories of Familial Adenomatous Polyposis

FAMILIAL ADENOMATOUS POLYPOSIS STORIES
Familial Adenomatous Polyposis stories
Hi.  In May 2011, after a 10 day stay at a local hospital that started on Mother's Day where it was first thought that I had an appendicitis I went home with the results of a scope that found cancer in my decending colon and waiting for the result o...
Familial Adenomatous Polyposis stories
I found out at the age of 31 yrs that I had FAP, I was adopted and did not know about the disease in my birth dads family. I was not given a good out come after surgery but weeks afterwards the biopsies came in and there was no cancer, we all were so...
Familial Adenomatous Polyposis stories
Hi, all! So first of all, I found the link to this map here: https://www.facebook.com/groups/257034824414129/ There are tons of online resources for us. I especially love j-pouch.org, which has its own FAP section and a MASSIVE forum for you to ran...
Familial Adenomatous Polyposis stories
Familial Adenomatous Polyposis stories
Https://www.army.mil/article/90122

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Familial Adenomatous Polyposis forum

FAMILIAL ADENOMATOUS POLYPOSIS FORUM
Familial Adenomatous Polyposis forum
What mediciations or therapies have you found that are successful in limiting or reducing the growth of polyps?

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