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What are the best treatments for Familial Adenomatous Polyposis?

Treatments for Familial Adenomatous Polyposis: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.

Familial Adenomatous Polyposis treatments
7 answers
sulindac, tumeric with black pepper and quceritine

Posted May 18, 2017 by Holly 2000
Total proctocolectomy w/Ileostomy surgery

Posted May 19, 2017 by Daniel 2570
So I think that the best tretman for FAP is remove all colon and construction J pouch with temporary ileostomy.
The temporary ileostomy is very important for first two-five mounth.

Posted May 19, 2017 by Amina 200
Going in for yearly scopes and colonoscopies. Taking Sulindac

Posted May 29, 2017 by Mechelle 300
Surgery yas to be the best treatment. Excise the area. Surveillance is another treatment of a kind. Some people are finding success through medications such as Sulindac and other aspirin type medicines which are now shown to work on the polyps

Posted Sep 9, 2017 by Beverley 500
Diets with low fat and high fiber help significantly to keep IBS and polyps at a minimum. Having surgery to remove part or all of the colon also reduces risk of polyps and cancer.

Posted Sep 28, 2017 by Jennifer 1600
Well they start with a total coloectomy.

Posted Sep 29, 2017 by ChristiDarty 1300

Familial Adenomatous Polyposis treatments

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World map of Familial Adenomatous Polyposis

Find people with Familial Adenomatous Polyposis through the map. Connect with them and share experiences. Join the Familial Adenomatous Polyposis community.

Stories of Familial Adenomatous Polyposis

FAMILIAL ADENOMATOUS POLYPOSIS STORIES
Familial Adenomatous Polyposis stories
Hi.  In May 2011, after a 10 day stay at a local hospital that started on Mother's Day where it was first thought that I had an appendicitis I went home with the results of a scope that found cancer in my decending colon and waiting for the result o...
Familial Adenomatous Polyposis stories
I found out at the age of 31 yrs that I had FAP, I was adopted and did not know about the disease in my birth dads family. I was not given a good out come after surgery but weeks afterwards the biopsies came in and there was no cancer, we all were so...
Familial Adenomatous Polyposis stories
Hi, all! So first of all, I found the link to this map here: https://www.facebook.com/groups/257034824414129/ There are tons of online resources for us. I especially love j-pouch.org, which has its own FAP section and a MASSIVE forum for you to ran...
Familial Adenomatous Polyposis stories
Familial Adenomatous Polyposis stories
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Familial Adenomatous Polyposis forum

FAMILIAL ADENOMATOUS POLYPOSIS FORUM
Familial Adenomatous Polyposis forum
What mediciations or therapies have you found that are successful in limiting or reducing the growth of polyps?

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