Can people with Familial Adenomatous Polyposis work? What kind of work can they perform?

Most individuals living with Familial Adenomatous Polyposis (FAP) maintain active, successful careers and are fully capable of working in a wide range of professional fields. The ability to work is generally determined by an individual's specific surgical history, the timing of routine surveillance, and the management of any associated extra-intestinal symptoms.

Can individuals with Familial Adenomatous Polyposis maintain a career?

Yes, people with Familial Adenomatous Polyposis are typically able to pursue any career path they choose. Because FAP is a genetic condition characterized by the development of hundreds to thousands of polyps in the colon, the primary workplace considerations involve managing scheduled medical appointments for screenings and recovery time following prophylactic surgeries, such as a colectomy.

What types of work are most suitable for those with FAP?

There is no specific job restriction for those with Familial Adenomatous Polyposis. However, many individuals prefer roles that offer flexibility. Careers that allow for remote work or hybrid schedules are often favored, as they permit patients to attend frequent gastrointestinal check-ups without significant disruption to their professional responsibilities.

What workplace accommodations can assist in managing FAP?

Effective workplace accommodations for Familial Adenomatous Polyposis focus on balance and health maintenance. Consider these common strategies:

• Flexible Scheduling: Adjusting hours to accommodate medical appointments or recovery periods after surveillance procedures.


• Remote Work: Utilizing home-based work to manage fatigue or digestive symptoms comfortably.


• Ergonomic Support: Requesting specialized seating if abdominal discomfort or post-surgical recovery makes standard office chairs difficult to use.


• Gradual Return-to-Work Plans: Implementing a phased transition after major surgeries to ensure a sustainable workload.

How can I communicate my needs to an employer?

Open communication is key to managing Familial Adenomatous Polyposis in the workplace. You are not required to disclose your full medical history, but sharing information about your need for routine medical leave can help your employer provide necessary support. Many of the 147 members of the Familial Adenomatous Polyposis community on DiseaseMaps.org report that proactively discussing their schedule with HR allows them to maintain high performance while prioritizing their health.

Next steps

• Consult with your gastroenterologist to create a predictable schedule for your routine screenings.


• Review local labor laws regarding disability accommodations to understand your rights in the workplace.


• Connect with the Familial Adenomatous Polyposis community at DiseaseMaps.org to learn how others balance their careers and health.

Medical disclaimer: This information is for educational purposes only and does not replace professional medical advice, diagnosis, or treatment.

References

• NIH Genetic and Rare Diseases Information Center (GARD): Familial Adenomatous Polyposis


• Orphanet: Familial Adenomatous Polyposis


• OMIM (Online Mendelian Inheritance in Man): Adenomatous Polyposis of the Colon


• The Polyposis Registry (St. Mark’s Hospital)