2. Hereditary multiple exostoses
3. Interviews

Roxanne's interview

How did all start?

When I was 6 months old. 1969

Do you already have a diagnosis? How long did it take you to get it?

I was finally diagnosed at 3 years old.

For what medical specialties have you been treated? What has been the most useful specialty for your?

I had 13 surgeries. One leg was longer than the other. This was corrected.

What has been the most useful thing for you so far?

Being active and my surgeon at Columbia Presbyterian Hospital in NY. He passed. His name was Dr Harold Dick.

What have been your biggest difficulties?

Pain when it is very humid. Flexibility with my ankle.