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Which advice would you give to someone who has just been diagnosed with Hereditary multiple exostoses?
Advice for the newly diagnosed with Hereditary multiple exostoses, written by people who have lived it. What they wish they had known on day one.
Keep strong, there is much beautiful things to be thankful in this life
Posted Sep 12, 2017 by Helmina Batubara 700
If you are reading this and just been diagnosed it will go much farther to explain what you already know than teach you new things though some might raise awareness that was not there before. I could not sit in a cross-legged (lotus position) because my legs could not bend that way, while for others it was easy and natural, but I was accused of not trying. My knees were never good and standing still and got more and more uncomfortable to the point of pain eventually that others do not experience, but was considered lazy for wanting to sit down It hadn't occurred to me that others did not experience the same discomfort.
Mostly recognize that repetition creates more issues than the exercise. You can rub a thumb across a muscle once or ten times and hardly notice, but keep it up and there can be serious swelling and damage. Your bumps are just such "thumbs".
Mostly recognize that repetition creates more issues than the exercise. You can rub a thumb across a muscle once or ten times and hardly notice, but keep it up and there can be serious swelling and damage. Your bumps are just such "thumbs".
Posted Jul 24, 2020 by Bob D 1200
