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There are many different ways to live your life. There are many different walls put in front of you throughout your life. Some people lose a family member, others a love but few have to battle against themselves and the misfortune of an illness. Havi...
I have "spontaneous" MHE. No one else in my family has been identified as having MHE. We first discovered it when I was 4 years old, and I have had 17 surgeries. I have actually done really well most of the time and I have a very active life! Most ...
I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. W...
