Stories of Lesch-Nyhan Syndrome

LESCH-NYHAN SYNDROME STORIES

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Message: Good Day Every-One My Names are Muhammad Tahir Hayat Sipra, am from India in Punjab, Me and my entire family has been suffering from Lesch-Nyhan Syndrome from birth, We have gone to all the hospitals and there wasn't any solution even our fa...

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6/14/18, 11:18 AM by Monalisa Veronica

HI THIS IS GLENNDENS MOM AND DAD

Hi All, This is crystal stovall, I have a son named Glennden with lns, I also Had a brother named James whom passed at the age of 29 with lns. Glennden is 10 years old and was diagnosed at 6 months of age. His First extraction of his teeth he wa...

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by Glennden stovall

NICKY

Hi my son is Nicky he was diagnosed with lns at the age of 3. He is a wonderful child whose world is pretty much dominated by lns. He's had dbs which helps a great deal but we do still struggle.

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5/26/17, 6:31 PM by Nicky

MY SON JACK

Hi my son Jack who is 3 was diagnosed with lns in January 2017. He is a bright little boy who makes anyone he comes across smile. His daily meds include allpurionol, potassium citrate, gabenpentin, and sleeping tablets as he is the worst sleeper.

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5/26/17, 5:26 PM by Carly

THE LONG AND WINDING ROAD

Giles is my first born son.He was breach presentation and delivered by c section. He was so miserable as a baby and not passing the standard child development milestones. Because we had private medical insurance we were able to get accesss to a paedi...

Lesch-Nyhan Syndrome diet. Is there a diet which improves the quality of life of people with Lesch-Nyhan Syndrome?

Diet and Lesch-Nyhan Syndrome: foods that patients report help their quality of life, with a medically reviewed summary.

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