2. Lichen Sclerosus
3. Interviews

Hatethisdisease's interview

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How did all start?

I’m really not sure but I had symptoms staring at 17 years old

Do you already have a diagnosis? How long did it take you to get it?

I got a diagnosis in 2003 with a biopsy

For what medical specialties have you been treated? What has been the most useful specialty for your?

Clobetisol progesterone and that’s about all

What has been the most useful thing for you so far?

Talking to others who have this disease not physically but in a online group

What have been your biggest difficulties?

It’s affected my life every day

How has your social and family environment reacted? Have your social or family relationships changed?

My husband knows and he’s very supportive

What things have you stopped doing?

It depends when I have a flare up I can’t do much

What do you think about the future?

That I’m going to be deformed from the fusion hoping to find a treatment

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