- Lichen Sclerosus
- Interviews
Hatethisdisease's interview
How did all start?
I’m really not sure but I had symptoms staring at 17 years old
Do you already have a diagnosis? How long did it take you to get it?
I got a diagnosis in 2003 with a biopsy
For what medical specialties have you been treated? What has been the most useful specialty for your?
Clobetisol progesterone and that’s about all
What has been the most useful thing for you so far?
Talking to others who have this disease not physically but in a online group
What have been your biggest difficulties?
It’s affected my life every day
How has your social and family environment reacted? Have your social or family relationships changed?
My husband knows and he’s very supportive
What things have you stopped doing?
It depends when I have a flare up I can’t do much
What do you think about the future?
That I’m going to be deformed from the fusion hoping to find a treatment
