9

What is the life expectancy of someone with Loeys Dietz syndrome?

Life expectancy of people with Loeys Dietz syndrome and recent progresses and researches in Loeys Dietz syndrome

Loeys Dietz syndrome life expectancy
5 answers
Prior to modern medicine being what it is today, life expectancy was quite low, but to paraphrase from many studies, with early diagnosis and proper follow-up and care, those affected by LDS can live out full happy healthy lives. Sure we will have surgeries here and there for various things and aortic valve replacement but the services with those are very high.

Posted May 12, 2019 by Derek 4050
With proper health care you cane lead a long and functioning life. I know of folks right now we’ll into their 70’s.

Posted May 13, 2019 by Helene 1600
Undiagnosed, LDS would usually give you a 29 years old life expectancy on a average. Diagnosed, early as possible, medicated and managed, you can live a reasonable life, depending on severity of genetic symptoms.

Posted May 14, 2019 by Glenn 2500
We are all different
I’m 66 and have multiple health issues but plan on living a long time more. My son had the dissection and his suffering a lot. His son his maybe the the lucky one and will have his tragedies diverted. But we are all different and the length of our livers will be different too.

Posted May 16, 2019 by Vicki 1800
Leider ist unsereTochter nur 23 geworden, viel Leid Krankenhaus Aufenthalte und OPs,
ein besonderer Mensch, ihre 2 Geschwister sind gesund...

Posted Dec 23, 2020 by Roswitha 200

Loeys Dietz syndrome life expectancy

Celebrities with Loeys Dietz syndrome

Celebrities with Loeys Dietz syndrome

4 answers
Is Loeys Dietz syndrome hereditary?

Is Loeys Dietz syndrome hereditary?

7 answers
Is Loeys Dietz syndrome contagious?

Is Loeys Dietz syndrome contagious?

7 answers
ICD9 and ICD10 codes of Loeys Dietz syndrome

ICD10 code of Loeys Dietz syndrome and ICD9 code

5 answers
Natural treatment of Loeys Dietz syndrome

Is there any natural treatment for Loeys Dietz syndrome?

4 answers
Living with Loeys Dietz syndrome

Living with Loeys Dietz syndrome. How to live with Loeys Dietz syndrome?

6 answers
Loeys Dietz syndrome diet

Loeys Dietz syndrome diet. Is there a diet which improves the quality of li...

6 answers
History of Loeys Dietz syndrome

What is the history of Loeys Dietz syndrome?

4 answers

World map of Loeys Dietz syndrome

Find people with Loeys Dietz syndrome through the map. Connect with them and share experiences. Join the Loeys Dietz syndrome community.

Stories of Loeys Dietz syndrome

LOEYS DIETZ SYNDROME STORIES
Loeys Dietz syndrome stories
my family has lds my husband and 3 kids but the doctors say they dont now much about the disease
Loeys Dietz syndrome stories
I have a clinical diagnosis of Loeys-Dietz Syndrome as there has been no gene match up for me yet. I also really do not have any family to help search for a gene as those who probably were affected by it are no longer alive and I did not have any kid...

Tell your story and help others

Tell my story

Loeys Dietz syndrome forum

LOEYS DIETZ SYNDROME FORUM
Loeys Dietz syndrome forum
For details on the Aortic Dissection Awareness Week Events, please click Here For information about the speakers for the Medical Information day, please click Here.          ​ The John Ritter Foundation for Aortic Healt...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map