Prior to modern medicine being what it is today, life expectancy was quite low, but to paraphrase from many studies, with early diagnosis and proper follow-up and care, those affected by LDS can live out full happy healthy lives. Sure we will have surgeries here and there for various things and aortic valve replacement but the services with those are very high.
Undiagnosed, LDS would usually give you a 29 years old life expectancy on a average. Diagnosed, early as possible, medicated and managed, you can live a reasonable life, depending on severity of genetic symptoms.
We are all different
I’m 66 and have multiple health issues but plan on living a long time more. My son had the dissection and his suffering a lot. His son his maybe the the lucky one and will have his tragedies diverted. But we are all different and the length of our livers will be different too.
I have a clinical diagnosis of Loeys-Dietz Syndrome as there has been no gene match up for me yet. I also really do not have any family to help search for a gene as those who probably were affected by it are no longer alive and I did not have any kid...
For details on the Aortic Dissection Awareness Week Events, please click Here
For information about the speakers for the Medical Information day, please click Here.
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The John Ritter Foundation for Aortic Healt...