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Living with Loeys Dietz syndrome. How to live with Loeys Dietz syndrome?
Living with Loeys Dietz syndrome: how patients cope day to day and stay positive - real experiences and practical tips.
Live your life to the fullest possible. Remember, LDS is a Syndrome - something you have. It does not define who you are!
Posted Feb 6, 2018 by Helene 1600
Symptom management only. Pain management for joints, regular CTA/MRA to catch aneurysms. Low impact exercise. Heart healthy diet.
Posted May 12, 2019 by Sherri 800
Live everyday to is fullest. Don't let shortcomings effect your happiness, the is always a trade off of what you can and can't do. Make the special things you can do be fun for you and your loved ones. I always made my differences a good laugh. We are all destined for greatness. Sign up for studies and groups to help others. The National Institute of Health has ongoing studies to be a part of for those with LDS.
Posted May 12, 2019 by Derek 4050
Follow doctors advice. Medications, rest, not overly raising heart rate. Staying generally fit. Not carrying too much weight etc.
Posted May 14, 2019 by Glenn 2500
Follow your doctors advice
Exercise as able
Talk about your feelings and fears
Breathe
Exercise as able
Talk about your feelings and fears
Breathe
Posted May 16, 2019 by Vicki 1800
