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Is there any natural treatment for Loeys Dietz syndrome?

Are there natural treatment(s) that may improve the quality of life of people with Loeys Dietz syndrome? Here you can see if there is any natural remedy and/or treatment that can help people with Loeys Dietz syndrome

Natural treatment of Loeys Dietz syndrome
3 answers
Natural treatments and remedies arw abalone to help with pain and comfort from the day top day struggles. CBD oil has been tried by many affected by LDS and some have found relief.

Posted May 12, 2019 by Derek 4050
The only treatment for Loeys-Dietz syndrome to prolong life expectancy is surgical repair of the aortic aneurysm. Surgical repair of the aneurysms is generally successful. Since the aneurysms tend to rupture early, early and accurate diagnosis is critical to ensure that affected individuals receive prompt surgical treatment. The genetic test can be of value in identifying which individuals with aortic aneurysms have Loeys-Dietz syndrome, and therefore, should have immediate surgery. In contrast to Loeys-Dietz syndrome, in other inherited syndromes associated with aortic aneurysms, surgery carries a poorer prognosis, and the aneurysms can be managed with medications for a longer period of time before surgery becomes necessary. Studies are ongoing to determine whether drug treatment of the Loeys-Dietz syndrome also may be of value.

At the time of diagnosis, imaging studies of the aorta are recommended and should be repeated after 6 months to determine if aortic enlargement is occurring. If the diameter of the aorta is not enlarging, yearly magnetic resonance imaging (MRI) scans from the of the circulation from the barin to the pelvis are recommended, since affected persons commonly develop aneurysms that are treatable surgically.

Posted May 14, 2019 by Glenn 2500
No. But many treatments can be used when needing

Posted May 16, 2019 by Vicki 1800

Natural treatment of Loeys Dietz syndrome

Loeys Dietz syndrome life expectancy

What is the life expectancy of someone with Loeys Dietz syndrome?

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Celebrities with Loeys Dietz syndrome

Celebrities with Loeys Dietz syndrome

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Is Loeys Dietz syndrome hereditary?

Is Loeys Dietz syndrome hereditary?

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Is Loeys Dietz syndrome contagious?

Is Loeys Dietz syndrome contagious?

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ICD9 and ICD10 codes of Loeys Dietz syndrome

ICD10 code of Loeys Dietz syndrome and ICD9 code

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Living with Loeys Dietz syndrome

Living with Loeys Dietz syndrome. How to live with Loeys Dietz syndrome?

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Loeys Dietz syndrome diet

Loeys Dietz syndrome diet. Is there a diet which improves the quality of li...

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History of Loeys Dietz syndrome

What is the history of Loeys Dietz syndrome?

4 answers

World map of Loeys Dietz syndrome

Find people with Loeys Dietz syndrome through the map. Connect with them and share experiences. Join the Loeys Dietz syndrome community.

Stories of Loeys Dietz syndrome

LOEYS DIETZ SYNDROME STORIES
Loeys Dietz syndrome stories
my family has lds my husband and 3 kids but the doctors say they dont now much about the disease
Loeys Dietz syndrome stories
I have a clinical diagnosis of Loeys-Dietz Syndrome as there has been no gene match up for me yet. I also really do not have any family to help search for a gene as those who probably were affected by it are no longer alive and I did not have any kid...

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Loeys Dietz syndrome forum

LOEYS DIETZ SYNDROME FORUM
Loeys Dietz syndrome forum
For details on the Aortic Dissection Awareness Week Events, please click Here For information about the speakers for the Medical Information day, please click Here.          ​ The John Ritter Foundation for Aortic Healt...

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