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Story about Marfan Syndrome , Ectodermal Dysplasia.

Me

Jul 13, 2026

By: Nigel


well it's so hard having to wright about yourself as you never know where to start. So let's see well I'm 30 and I was have marfans  so do 2 of my children and there 9 and 5 my other 2 don't have it. I'm also Maori decent. So I never had the chance to meet my farther he passed away after having his mitral valve replace in the early 80s he die due to a blood clot in his liver. And recently lost my grandmother to the same thing. No I have done the total oppersit of what the doctors told me to do and I gave thrushed my body very hard and cause of this they have found that my heart is one of the strongest that they have seen in a long time considering I have had 9 heart attracts befor I was 18 and since I started to push my body I have not gad any major issues

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